Spleen

Colleen went yesterday to have an ultrasound of her spleen. Later, the late effects doctor called with the results. She has a normal looking spleen, just more confirmation that her spleen has regained functioning. All her other blood work and tests were fine, including a hemoglobin of 11.5. Excellent! Thank you to everyone for their prayers for our precious daughter, and especially thanks to Jesus Christ for the cure!

Long Term Follow Up

Colleen went to the Long Term Follow Up Clinic yesterday. She is maintaining her growth curve in height and weight, even though she seems so small to us, she is in the 10-12%, where she has always been. She had a heart echo, pulmonary testing, and blood work, plus all the specialists she saw. Sadly, she ended up with four vaccinations, protocols keep changing. She was unhappy about 5 pokes, but did very well and was "rewarded" with two prizes out of the treasure chest, (Cinderella doll and jewelery). She needs to return for an ultrasound of her spleen next week to help confirm her spleen is functioning. We also don't have all the test results, but she is doing great and we don't expect any tests to show otherwise. Five years plus since her BMT, she is doing very well and we are very proud of her! Great job growing and staying healthy, Colleen! Keep up the good work!

Spleen

Colleen was taken off antibiotics in January, her blood work shows that her spleen has regained function. Glory to God!

Found this in an old email. Colleen got "11.7" parts per million of stem cells from William in her bone marrow transplant. She needed a minimum of "2.0", so she got an abundance from her HERO BROTHER. And additionally, the doctors got MORE and were able to freeze some.

BMT Clinic Follow Up

Colleen returned to the BMT Clinic yesterday for her semi-annual follow up. Medically, she is doing GREAT. Her hemaglobin was "low" at 11.4, but all in perspective her pre-transplant norm was around 6.9. Our concerns for her remain academic. The school absolutely refused to retain her in First Grade. Susan went to a Homeschool Convention in Lansing last May, so we won't be fighting with the school district. Second grade is in her future for September, but not at our public school. The normal reading level for end of First Grade is 16. Colleen's goal was a crappy level I, and she is only at a Level E. It seems so odd that "she's social" would be the reasoning to promote a child. Unless there are some earth shattering "light bulb moments" at her Neuro Psych evaluation next month, Homeschool with ABeka Academy for Second Grade awaits her.

Right To Life

Right To Life reporter notified us yesterday that Colleen's story has also been posted on the RTL website, www.rtl.org. This is in addition to the posting from last summer, still at www.stemcellresearchcures.com.

Long Term Follow Up Clinic

Colleen had her Long Term Follow Up clinic on Friday, January 30th. She is doing great, even bumped up her wisp of a self from the tenth percentile for height and weight to a hefty thirteenth percentile. Way to go Colleen!