Clinic

Colleen had a great day at Clinic on Tuesday. First, her DNA blood test came back 95% William. With a 5% margin of error, that could be 100%. They will retest her in one month, and as long as the percentage doesn't drop, then it looks like a confirmed cure! She also escaped a test they do for cancer patients that sickle cell patients don't need, a bone marrow biopsy. Since she did not have cancer, there is no reason to check her marrow. So, one OUCHIE test averted! Also, her magnesium level on three times a day oral was EXCELLENT, so her port needle was removed and no more IVs at home. Yippee! She also doesn't need to go back until nine days, so they are pushing her appointments back to less than once per week. After next week, if all is well, she will probably only be in clinic once every two weeks. And in addition, her Tacro drug level was decreased. When she is off of the Tacro, then she can start going to the pediatrician for follow up. The estimate is two to three months. Her hair is growing back so well. She has baby fine hair all over her head, like a newborn. We will have to take a picture and post our no longer bald beauty. Thank you everyone for your prayers. Please continue to pray for Colleen to remain infection free, to keep William's bone marrow and not lose it, and pray for our entire family. Thank you.