North Pole
Looks like Colleen will be able to fly to the North Pole on December 12. She will be at day 101 post transplant, and if she is healthy that week, she can board a Northwest Airline with Dad and other pediatric patients and "fly" to see Santa Claus! Northwest has been taking this trip for years. It always makes the local news. Please continue to pray that she remains healthy.
Colleen only needs IV medication fluid two hours per day. This is much easier then the original 14 hours a day when she was first discharged. Also, last clinic day she started the oral medication "magnesium" that she is getting in the IV currently. The goal is for her to take the oral, then she can stop the IV at home altogether. Unfortunately, it is giving her the "runs" again, which was a predicted side effect. We will she what happens at Clinic next week. It would be teriffic if she could have all her medications orally. Currently she takes SIX or Seven different oral medications (depending on the day) and two other medications depending on how she is doing. She has not needed her blood pressure medication for over one month! She is doing GREAT.
Please note that we added a Pay Pal button, if you want a copy of the MACARONI and CHEESE cookbook, just click on pay pal.
Colleen only needs IV medication fluid two hours per day. This is much easier then the original 14 hours a day when she was first discharged. Also, last clinic day she started the oral medication "magnesium" that she is getting in the IV currently. The goal is for her to take the oral, then she can stop the IV at home altogether. Unfortunately, it is giving her the "runs" again, which was a predicted side effect. We will she what happens at Clinic next week. It would be teriffic if she could have all her medications orally. Currently she takes SIX or Seven different oral medications (depending on the day) and two other medications depending on how she is doing. She has not needed her blood pressure medication for over one month! She is doing GREAT.
Please note that we added a Pay Pal button, if you want a copy of the MACARONI and CHEESE cookbook, just click on pay pal.
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