UPDATES
FROM: Sunday 2/26/06 5:53 PM
She'll be hospitalized at least another 3 or 4 days. Some of herlabs are a bit "off" and also the steroids have made her bloodpressure go up. She is now getting all her nutrition by IV, and theyare tapering it down to 12 hours so that she can go home on 12 hourIVs and not 24 hours per day. The steroids have worked! Herdiahrrea has decreased tremendously! Everyone is very happy this hasworked so rapidly. Of course, six months of chronic diahrrea beforethey get the "right" treatment isn't exactly rapid, but that is whyit is the "ART OF MEDICINE" and not called the SCIENCE of Medicine.Thank you for all of your prayers.
FROM: 2/23/2006 8:37 PM
Colleen's biopsy results are back, while she does NOT have Graft vs. Host disease, the news isn't very good either. Her digestive tract is very assulted. She has what "Looks Like" Crohn's disease, but the docs are quick to point out that with her immune suppression and BMT, it may not actually be Crohn's. It is likely she had an infection (C-diff in late September) and her digestive tract never recovered. And that interfers with absorption of the nutrition (explains her difficulty to gain weight). She is being treated for Crohn's disease with steroids, and also several medications that she had been weaned down on or had been discontinued (part of her BMT protocol) are being started again. In addition, her diarrhea cultured positive for another infection, roto virus (sp?), probably what made her sick with vomiting which began last Sunday. COLLEEN is a VERY SICK little girl. She is being "hydrated" and IV nutrition has been started again. In addition, to make certain they have looked at her digestive tract as best they can, she has another procedure scheduled. An "upper GI" barium xray study, so that they can see her entire intestines with the radio-opaque dye, is Friday at 11:30 AM.
She'll be hospitalized at least another 3 or 4 days. Some of herlabs are a bit "off" and also the steroids have made her bloodpressure go up. She is now getting all her nutrition by IV, and theyare tapering it down to 12 hours so that she can go home on 12 hourIVs and not 24 hours per day. The steroids have worked! Herdiahrrea has decreased tremendously! Everyone is very happy this hasworked so rapidly. Of course, six months of chronic diahrrea beforethey get the "right" treatment isn't exactly rapid, but that is whyit is the "ART OF MEDICINE" and not called the SCIENCE of Medicine.Thank you for all of your prayers.
FROM: 2/23/2006 8:37 PM
Colleen's biopsy results are back, while she does NOT have Graft vs. Host disease, the news isn't very good either. Her digestive tract is very assulted. She has what "Looks Like" Crohn's disease, but the docs are quick to point out that with her immune suppression and BMT, it may not actually be Crohn's. It is likely she had an infection (C-diff in late September) and her digestive tract never recovered. And that interfers with absorption of the nutrition (explains her difficulty to gain weight). She is being treated for Crohn's disease with steroids, and also several medications that she had been weaned down on or had been discontinued (part of her BMT protocol) are being started again. In addition, her diarrhea cultured positive for another infection, roto virus (sp?), probably what made her sick with vomiting which began last Sunday. COLLEEN is a VERY SICK little girl. She is being "hydrated" and IV nutrition has been started again. In addition, to make certain they have looked at her digestive tract as best they can, she has another procedure scheduled. An "upper GI" barium xray study, so that they can see her entire intestines with the radio-opaque dye, is Friday at 11:30 AM.
posted by MarkAndSusan at 11:43 AM
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