One week later, all systems "Go"

Thank you for all the prayers, please keep praying for our family.It is so overwhelming. Plus, we have had quite a week. Colleen came home last Wednesday night, October 12. The refrigerator supplied by the home medical service quit working so all the meds and nutrition inside had to be replaced. Thursday, October 13, we met Ben's new caseworker. Friday we returned to the hospital CLINIC with Colleen.The furnace kicked on for the first time this season, but then did not go off. The visiting nurse's car died in our driveway onSaturday. Colleen also had lots of blood in her diaper on Saturday and a low fever on Sunday. Colleen visited the hospital CLINIC again Monday. She had diarrhea all over the chair in the blood draw clinic. Very embarassing. Also, Susan discovered NO change of clothes in the diaper bag, additinally her coat was covered in "muck". Meds and nutrition was adjusted very slightly, and she filled another diaper for the doctor and nurse, complete with blood for them to see. We left CLINIC with a new shirt and pants and a blanket. We had planned to return the blanket tomorrow, but Colleen thinks they gave it to her, "my blankie". When all is said and done, her BMT will be in the six figures, I suppose the blanket is hers, bought and paid for!
Ben and William visited Dwayne, their half brother, at the new agency on Monday. We called for furnace repair Monday morning. The tech was supposed to arrive by 3 PM, so tech "Dave S." arrived at 5 PM, an hour after Dad had left to take Ben (and William) to the sibling visit. Not only was the furnace not repaired, but the tech left it NOT FUNCTIONAL at all, and the pilot light would not stay lit. Fortunately, Monday night was not that cold. One extra blanket for everyone kept everyone warm. Tuesday a new tech repaired the pilot light.
Colleen is finshed with her flagil antibiotic dosing Monday night. Most meds are oral now, with the exception of one medicine we add to her IV food. Colleen goes back to CLINIC tomorrow.
Mark and Susan